A QUALITATIVE INQUIRY INTO THE EXPERIENCES OF PEOPLE LIVING WITH HIV/AIDS FOR AN EXTENDED PERIOD OF TIME

Abstract

The experience of living with a chronic illness such as HIV/AIDS is complex. The longevity of people living with HIV/AIDS is increasing and changing the medical and mental health care provision for these individuals. A qualitative approach was used to explore the lived experiences of long-term survivors of HIV/AIDS along three factors: (a) uncertainties, (b) stigma, and (c) coping. The research was guided by the constructivist paradigm and biopsychosocial approach. The methodology utilized was the constructivist grounded theory approach, which emphasizes simultaneous data collection and analysis. Semi-structured interviews were conducted with 10 participants who have been living with HIV/AIDS for a minimum of 10 years and who, at the time of the interview, were living in south Florida. The data were analyzed using open coding, focused coding, and theoretical coding. In addition, the constant comparative method was utilized throughout the data analysis process. The findings revealed that living as a long-term survivor of HIV/AIDS entails existing within an ongoing process of acceptance and living with this chronic illness. Such a process is often challenging and entails a constant reconstruction of goals, identity, and relationships. However, the process is facilitated by four interacting values of autonomy, belonging, resiliency, and hope that helped each person continue to accept and live with HIV/AIDS. Those who are able to continue to manage this process are able to live constructive, long lives with this chronic illness.